Also while we were at Emoree's pediatrican appointment yesterday, we talked to the pedi about Anya. I am very happy to hear that she currently has two patients with Hypoplastic Left Heart Syndrome, and she trained under one of the doctors who was part of creating the Norwood (1st) surgery that Anya will have, so she is very knowledgable and comfortable with handling Anya's diagnosis. She also said if we have any issues after hours once Anya is home, we will have direct phone access to her, and we won't have to use the after hours messaging on call system. Big relief! She also said even though she isn't connected with UMMC, to call her when I am in labor or when Anya is born because she will make a trip over to UMMC to check in on her.
Today I had my cervix check, which measured 2.0-2.3cm! Still holding stable ;) They told me they will probably measure my cervix for 2 more weeks just to make sure it stays stable. They also printed me 4 pictures today, Anya was semi-cooperative :) I got to see the fetal cardiologist again today too, she wanted to make sure she saw me because she was going out of town for two weeks. The tech was asking her a lot of questions about what she was scanning and Anya's specific defect, so I got to learn a lot more too... apparantly she really IS more stable now than she was when she was first diagnosed. The fetal cardiologist said that Anya was alot more critical when first diagnosed because her PFO was closed / nearly closed and she had a lot more pressure in her arteries than she does now. Now her PFO looks okay, which alleviated pressure. It was good to hear :) The tech also asked about the surgeries, her aorta, and the left side of her heart, and the fetal cardiologist said the surgeries rework the "plumbing", but they can't fix the left side of the heart, which I already knew. She doesn't have a left aorta, because there is no blood flow in the left so the aorta never formed.
At the end of last week I made Anya a 0-3 month size elf hat, its more of a photography prop than anything, I love it :)
My current in progress projects are Emoree's big sister present, and a gift for someone else.
Something else special... I have lined up a professional photographer from Heartlove Photography to take pictures of Anya in the NICU before her first surgery. This is something special that I really want to do. Heartlove Photography is affiliated with the NILMDTS organization (among others), they are an organization that has professional photographers signed up with them to take portraits of critical ill and bereavement photos of infants in NICUs at no cost. I am familiar with this organization from back when I used to stalk pro photography forums when I was first learning how to use my camera, I just never thought I'd have a reason to use it... but anyway she emailed me back right away and said to keep her updated, and to let her know when she is born so she can come do photos for me, because I want them done before her first surgery.
28 Weeks: 197.6 lbs (+ 9 lbs!)